Ty Hafan

#family friday

this is me… king cai

It’s Children’s Hospice Week – the one week of the year dedicated to raising funds and awareness of children’s hospices across the UK. The theme this year is ‘This is…’, and we’ve used this an opportunity to introduce you to the children we care for. So, without further ado…


Hiya, my name is King Cai and I am 11 years old. I was born with Vici Syndrome but I have never allowed my disability define me.

Even though I have Vici Syndrome and am aware it could limit certain aspects of life for me, I will never allow it to determine what those limits are, and mummy, daddy and everyone around me have always been supportive of me — I live in a world where people do not judge me by my disability. My world is fully inclusive.

By fully inclusive I mean everything is adapted to me, so it's all about what I can do rather than focusing on what I can't. I am involved in everything that happens whether it's a family party, a day out, watching a movie, a holiday… I'm coming!

I am like any other human, I have feelings and emotions I just express myself differently from others. I have friends and play with them; I go to school full time and love it. I am able to go in a car and enjoy a ride, I can go on holiday and have fun, I can go swimming and splash, I can have food and enjoy it, I can be naughty and know exactly what I'm doing, and most importantly I know my own mind. I know what I like and what I don't. I have the same basic needs as every human, but due to my condition the way they are delivered is different.

I smile, I laugh, I am loved and I touch everyone's hearts who meets me.

Every child expresses their emotions and love in different ways.

My life is just as important as anyone else's. It doesn't matter if I'm unable to talk, walk, eat, sit, I don't need to compare myself to other people because I am me! I am able to communicate through facial expressions and body movements, I have a wheelchair to get me about, and I have a tube to feed me! Problem solved.

The only thing I don't have on my side is my health, but I have an amazing team of doctors, nurses, physios, OT, teachers, play therapist, care staff, friends and family who support me every step of the way and provide me with everything I need, to keep me well. And when I am ill they help make me better.

We are all equal in this world, and from the moment my parents knew about my disability they wanted to educate people about people who are different and show people we are not weird or scary.

After all what is normal?

I am a little boy who wants to be loved and treated the same as any other child.

I am King Cai. THIS IS ME.

Caring through the crisis

To help us support families like Cai's through the crisis, please donate today