Each year, we have to raise £4.5 million to provide a range of free services to families, from diagnosis for however long they need it, at home, at school, in hospital and at our hospice.
Specialist staff, including children’s nurses, family support workers and play workers, give care and comfort to families over weeks, months and years, helping them create precious memories to cherish forever.
And now you can decide which of those services you would like to support, by contributing to our fundraising target for your selected service.
“Saul loves songs and nursery rhymes and beams when he hears them. He also enjoys listening to the flute and really relaxes to it sound. When Saul’s health hasn’t been as good, we have used the sessions to help him relax. I play lots of flute and sing songs so that he can just lie back and let the music wash over him. The sessions have really benefitted Saul and his mum and dad have really enjoyed them as well”
Many children with life-limiting conditions have difficulties with communication.
However, almost everyone responds to music, regardless of any physical or cognitive disability.
Music therapy can provide emotional support in a similar way to counselling and can also be a way of developing skills. It can be particularly beneficial for a child who is unable to speak as it offers them a means of expression without words.
Being the sibling of a life-limited child can be a lonely experience. While mums and dads do everything they can, siblings often feel resentful of the extra attention received by their brother or sister. This can quickly turn into guilt, as most siblings are mindful of the immense pressure the family is under.