As one of Lewys’ links I am allocated to work with him when he visits Tŷ Hafan. But as him and his brother, Rhodri, are inseparable you pretty much work with both of them.
We hit our first anniversary, Archie’s birthday on 6 September. It was a lot harder than we had expected.
12-year-old Olivia suffers from cerebral palsy, visual impairment and physical delay.
Kelly and Damien Matthews were devastated when they were told their daughter may not survive her first few days due to a life-threatening condition called Central Hypoventilation.
From spending time with his mates to playing video games or going bowling, outgoing Rhys loves nothing more than staying at Tŷ Hafan.
Three-year-old Casey was born with severe brain damage following complications at birth. He has since been diagnosed with severe epilepsy, spasms, cortical visual impairment and evolving cerebral palsy.
They were told the most devastating news any parent can hear – their unborn daughter had a condition that meant it was very likely she would die in childhood.
Whilst battling cancer as a baby, Ellis Smith from Cwmbran was diagnosed with neurofibromatosis type 1 (NF1), a genetic conditioncausing benign tumours to grow on and inside the body.
When Alyssia was four months old, her mum, Danielle, noticed she wasn’t developing like other babies her age.